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ADHD and autism service costs in England 'running out of control', NHS leaders warn

Created at 28 Aug · 9:35 AM1 source↑ Market-relevant
IN SHORT

NHS leaders in England are warning that the costs associated with soaring demand for ADHD and autism services have become unsustainable, with spending in some areas increasing tenfold annually. This surge is attributed to increased demand, a lack of NHS capacity, and the "right to choose" policy, leading to a proliferation of providers and significant price variations.

Key Numbers

£146,000 to £1.5mmonthly spend increase for one ICB
£11m to £51mspending increase for adult ADHD services
80providers on one ICB's patch
12–14 to 48number of providers for another ICB
£300 to £3,000price variation for similar services paid by one ICB

Who's Involved

NHS Alliance
Represents health managers and issued a report on ADHD and autism service costs
Rebecca Gray
Director of the NHS Alliance’s mental health network

↳ Why This Matters

The escalating costs and demand for ADHD and autism services in England are straining the NHS budget, potentially impacting other healthcare provisions and patient care. The lack of standardized pricing and quality control raises concerns about value for money and equitable access for patients and taxpayers.

Key facts

  • NHS leaders in England have warned that the costs of meeting demand for ADHD and autism services are unsustainable.
  • Spending on these services has increased dramatically, with some areas seeing costs rise tenfold in a year.
  • A proliferation of new providers, partly due to the "right to choose" policy, has contributed to cost pressures and price variations.
  • Concerns exist regarding the quality assurance and regulation of these new providers.
  • The NHS Alliance is advocating for a national mandatory price and service specification for ADHD and autism services.
  • NHS leaders in England have issued a stark warning that the escalating costs associated with soaring demand for ADHD and autism services are becoming unsustainable and "running out of control." The NHS Alliance, representing health managers, highlighted that spending in some regions has increased by as much as tenfold over a single year.

    The surge in demand, particularly since the COVID-19 pandemic, is forcing some health bodies to close waiting lists and reallocate resources from other services. One integrated care board (ICB) reported its monthly expenditure on these services jumped from £146,000 to £1.5 million. Another ICB projected its spending on adult ADHD services to rise from £11 million in the previous financial year to £51 million in the current one.

    The report attributes this situation to increased demand, insufficient NHS capacity, and the "right to choose" policy, which allows patients to select any qualified provider for diagnosis. This has led to a significant increase in the number of providers, with one ICB now working with 80 providers, up from 12-14 two years prior. Concerns have been raised by ICBs regarding the quality assurance and regulation of these numerous, often small and unregulated, providers who may offer assessments but not ongoing care.

    While the expanded capacity has helped reduce assessment delays, the absence of a national tariff has resulted in substantial price variations for similar services, exacerbating severe cost pressures. One ICB noted it was paying between £300 and £3,000 for comparable services. Rebecca Gray, director of the NHS Alliance’s mental health network, stated that local health leaders are caught between understanding patient anguish over long waits and facing uncontrollable soaring costs. She emphasized that unplanned overspends disrupt budgets and long-term planning, creating an unsustainable situation for patients and taxpayers.

    The NHS Alliance is urging for the implementation of a national mandatory price (tariff) and a consistent service specification for all NHS-funded ADHD and autism providers.

    Frequently asked questions

    The increase is driven by soaring demand, a lack of NHS capacity, and the "right to choose" policy allowing patients to select providers, leading to a proliferation of new, often unregulated, providers with widely varying prices.

    One ICB saw its monthly spend rise from £146,000 to £1.5 million, while another projected its adult ADHD service spending to increase from £11 million to £51 million in a single financial year.

    There are concerns about quality assurance and regulation, especially as many small, non-regulated providers enter the market, capable of assessments but not necessarily ongoing care.

    The NHS Alliance is calling for a national mandatory price (tariff) and a national service specification to be applied consistently across all NHS-funded providers.

    What Happens Next

    01The NHS Alliance is calling for a national mandatory price for ADHD and autism services.
    02The NHS Alliance is calling for a national service specification for ADHD and autism services.

    How It Developed

    NHS leaders warned that costs for ADHD and autism services in England are "running out of control".
    Spending in some areas has risen by up to tenfold in a year.
    The NHS Alliance cited one integrated care board (ICB) where monthly spend increased from £146,000 to £1.5m.
    Another ICB reported adult ADHD service spending rising from £11m to a projected £51m.
    Increased demand and limited NHS capacity have led to a large influx of new providers.
    Patients' right to choose allows them to opt for any qualified provider for diagnosis.
    One ICB now has 80 providers on its patch, up from 12-14 two years ago.
    Concerns have been raised about quality assurance and regulation of new providers.

    Sources

    T1
    ADHD and autism costs in England ‘running out of control’, NHS leaders warnThe Guardian

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